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Hate to break it to you, but the OP's edited comment is far less harmful than yours.

I've been suffering from a myriad of symptoms that happen to match up with Segawa's... a disease I learned about less than ten minutes ago.

> please don't write them

Please don't make statements requesting that other's don't share their experiences with misdiagnosis and rare conditions. It's rude and furthers the stigma that some conditions are too rare for their sufferers to discuss.



> Hate to break it to you, but the OP's edited comment is far less harmful than yours.

It has been significantly, damned near whole cloth, edited in several ways since I said something, so I'd ask a little consideration that I'm coming from a good place. I'm not asking for anyone to avoid discussing Segawa's; I'm specifically responding to the speculation, across multiple comments, that the common element of dopamine as a neurotransmitter makes them related diseases. Given that people attack doctors when they try to arrest harmful discussion like this, I'm taking great pains to not be rude, so I apologize for coming across that way.

If you diagnosed yourself with Segawa's based on Wikipedia, please bear in mind that my single diagnosis across my entire career involved four months of differential diagnosis and observation, and led to a publication. It's simply that rare. There are several much more common possibilities, and I'd ask you to talk with your neurologist with an open mind rather than assuming the Internet has steered you correctly. That's also part of the reason I've responded as I have, exactly due to what you're saying.


It has not been edited near whole cloth. I added two sentences and modified two others. I think I've been very understanding of your skepticism, but at this point you're literally making stuff up.


Appreciate the comment and was unaware that it had been edited after your second comment.

I won't be diagnosing myself off of Wikipedia, next to no one in my family has the symptoms that I do so I doubt it's something like Segawa's.

I appreciate the apology and hope my reply didn't come off as too aggressive. Part of my tone comes from personal experience: doctors stating that I don't have a condition because it would be "statistically unlikely"... all without running a single test.


It was edited after their second comment, but they are exaggerating how much it was edited.

I added the first italicized sentence after their first comment, and after their second comment added the second italicized sentence and modified two other non-italicized sentences. I think... I may have just modified one non-italicized sentence after their second comment.




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