And the ethical alternative is, for chronic conditions, someone who suffers for their entire life and is not allowed to do anything about it?
Look at every wastebasket diagnosis (yes, that's a real term) out there. There is no "ethical", approved treatment. In fact, there's not even an understanding of what the condition is. Instead, doctors work down a list of bad ideas with their patients: all the various medications, supplements, and even surgeries that have ever reputedly worked. Many have uncertain evidence, many more have no evidence at all. Some patients eventually hit on something that works for them. Others don't.
According to your short statement: that's unethical. Bad. Stop!
So what's the alternative? Suicide? Doing nothing is intolerable.
I think you're being a little unfair to wastebasket diagnoses. you need something for insurance codes, for drug indications, for publishing research on. having a bucket of similar syndromes is a start for drilling down further. and often you can treat things supportively, even if you can't modify the disease itself.
doctors need to be up front with patients about wastebaskets though, and rule out other diagnoses. it's wrong to chalk someone's fits up to FND until you've ruled out epilepsy and other organic causes, for example. and even things like FND are probably "real", we just don't know enough about them yet.
It really depends on how wastebasket diagnoses are used. I've seen doctors lean on them without telling the patient, and the patient turned out to have some other valid diagnosis. It's an awful situation and significantly erodes relationships.
Even someone's fits might not be an FND after ruling everything else out. There are atypical presentations of organic diseases we don't have tests for. It's fine to use wastebasket codes as long as the patient understands, but I've also seen doctors lean on certain things really early in notes (eg FNDs) without much consideration, and it's a little much to me.
I'm criticizing the parent's comment that it's not ethical to treat people with "unscientific" treatments. This is in the context of an article criticizing phenylephrine, which differs from really, deeply unscientific stuff like, say, acupuncture or homeopathic remedies, in that it has studies going both ways but the balance (according to meta-analyses) is that it's useless as a decongestant, and is thus unscientific to have on the shelves.
How does that relate to wastebasket syndromes? At least for the one I have (a migraine variant) -- every single accepted treatment falls in the same basket. Some evidence, but not enough that it's really a good idea to use it. Unless, that is, the syndrome is ruining your life.
And behind this argument that yet more things should be taken off the shelves and regulated, I'll note that the US has one of the most restrictive, patient-unfriendly regulatory atmospheres in the world. It's goddamned ridiculous, pardon my French, that the "solution" to phenylephrine not being a good decongestant would be to regulate it so that it can't be sold without a prescription. Doubly so, in a country with a healthcare industry that's so thoroughly corrupt and dysfunctional that a vast swathe of patients can't afford to even go to a doctor to get whatever tenuous recommendation they may have. (Phenylephrine, by the way, has a number of uses other than decongestion.)
... that was a rant. But this system is truly screwed up, that fact has affected my life quite negatively, and it's annoying that the knee-jerk reaction so many people have is to keep playing along with this completely broken ethical system.
And note that such things don't always remain wastebasket diagnosis. Sometimes we figure out what's actually going on.
Personally, I think many of the cases where something works for one patient but not another is actually saying there's more than one possible cause for the situation.
Or, that the cause is known but there are several potential mechanisms behind it. Usually those mechanisms are not well understood and may in turn be triggered by something that may not have been explained by science yet -- an infection, genetic abnormality or even an injury earlier in life.
Look at every wastebasket diagnosis (yes, that's a real term) out there. There is no "ethical", approved treatment. In fact, there's not even an understanding of what the condition is. Instead, doctors work down a list of bad ideas with their patients: all the various medications, supplements, and even surgeries that have ever reputedly worked. Many have uncertain evidence, many more have no evidence at all. Some patients eventually hit on something that works for them. Others don't.
According to your short statement: that's unethical. Bad. Stop!
So what's the alternative? Suicide? Doing nothing is intolerable.